A book compiled of medical data spanning 24 years from having a daughter with Sanfilippo Syndrome - A Mucopolysaccharidosis Disease Level 3. This book is intended to help parents that have children with this specific disease. This is a guide but no replacement for new a current information that comes out every year. This information was obtained from numerous different sources. This is a reference only and not meant to replace any kind of medical advice or official medical literature based on this disease. This is my daughter's history of information. Checkout www.rosettarfairbanks.com and sign up to get notifications of future publications of books, music CD's, sheet music and inspirational poems.We all had one major thing in commonAr we had children with Mucopolysaccharidoses or Mucolipidoses. ... After the initial decision to form an organization, we decided that if we were going to do something, it should be done right. ... We decided on a $5.00 membership fee to offset the costs of publishing and mailing our newsletter. ... _ 13 _ Missya#39;s Medical Reference Book for Sanfilippo Syndrome Type A.
|Title||:||Missy's Medial Reference for Sanfilippo Syndrome Type A|
|Publisher||:||Rosetta R. Fairbanks - 2013-01-31|